International Psoriasis Council

Advancing Knowledge. Enhancing Care.

Advancing Knowledge. Enhancing Care.

Pustular Psoriasis

IMPROVE THE UNDERSTANDING OF THIS RARE AND LIFE-THREATENING DISEASE AND CONDUCT ACTIVITIES THAT WILL IMPROVE PATIENT TREATMENT

Project Description

IPC’s pustular psoriasis working group’s goal is to improve the understanding of this rare and life-threatening disease and conduct activities to improve patient treatment. Preliminary plans for 2022-2023 include: Reaching an international consensus on the classification of pustular psoriasis and related diseases; defining the objectives and addressing the feasibility of real-world data collection through international collaboration with pustular psoriasis clinical centers and laboratories; reaching a global consensus on pustular psoriasis scoring assessments; initiating intra-rater and inter-rater variability validation studies; and developing training modules on pustular scores and certification for clinical trial investigators.

Project Leaders

Hervé

Bachelez

,

MD, PhD

Hôpital Saint-Louis, Imagine Institute for Human Genetic Diseases, University of Paris

Paris

,

France

Chair

photo of Choonsieweng

Siew Eng

Choon

,

MBBS, FRCP

Hospital Sultanah Aminah Johor Bahru, School of Medicine and Health Services, Monash University Malaysia

Johor

,

Malaysia

Co-Chair

Working Group Members

  • Jonathan Barker, United Kingdom
  • Francesca Capon, United Kingdom
  • Johann Gudjonsson, United States
  • Christy Langan, United States, IPC CEO
  • Akimichi Morita, Japan
  • Ricardo Romiti, Brazil
  • Peter van de Kerkhof, Netherlands, IPC CMO